“Oh, I’m so sorry….”

No, that’s not what people say to The Hubby when they find out he’s married to me. It’s the response that often follows the sentence, “My child has Down syndrome.”

I’m not here to chastise anyone. I mean, before I had my own little Flexible Flyer, I might have said that a time or two. After all, society tells us that it’s such a tragedy.

And it was, for a time, back when I lived out a lifetime of fears inside my imagination. But it quickly became apparent that I’d been sold the proverbial bill o’ goods, that the people who told me how terrible Down syndrome was had no idea what they were talking about.

I realize it’s still hard for a non-Downs parent to conceptualize. Having 3 non-Downs children myself, in addition to the velcro monkey, I feel qualified to put things in perspective for you. So here, in no particular order (why do I always feel the need to say that? As if you people would honesty expect anything resembling “order” to spring from a blog titled “Chaos Diaries.”), I give you 10 things that are more tragic than Down syndrome.

1. Having a run in your pantyhose

2. The thought that gas prices might rise above $3 again.

3. The fact that I didn’t get my Christmas tree down until after Mothers’ Day, and it’s almost time to put it up again.

4. Baking a hot, fresh loaf of bread–and then finding you’re out of butter.

5. Opening the jewel case of your favorite CD to find that last time you played it, you took whatever was in the CD player at the time out and stashed it in this case—and now you have no idea where your favorite CD is.

6. Having to vent your dryer out into the laundry room because the plumbers who ran the ductwork thought running the duct up through two stories and an attic out onto the roof would make infinitely more sense than running it 6 inches through the exterior wall, so now it’s always clogged and your dryer takes 3 hours to dry (and even then it doesn’t dry, it just slighty-less-wettens), and poses a fire hazard, so now every time you want to dry a load of clothes you have to open the window (which happens to be over the cat litter box) and prop the box fan in it to suck the hot, humid air out, because as posh as the idea of having an in-home sauna sounds, “black mold eradication” isn’t quite as sexy.

7. Peanut allergy. Especially when your 5 year old rushes into your arms crying after school, because one of her friends grabbed her hand on the way out of the classroom and of course, they ate PB&J for lunch and now she’s afraid she’s going to die any minute.

8. Traveling with 4 children.

9. Going to SuperTorture with 4 children

10. Being 14 years old and spending an hour flat-ironing your hair, only to walk outside in the humidity and have it frizz (which, according to my 14 year old, would also make it onto a list titled: “Things that are more tragic than the end of life as we know it on this planet).

I could go on forever. Seriously–you know I could. And what’s more–I bet you can come up with a few of your own. Leave me a comment, and let me know what things in YOUR life are way more tragic than the fact that you have a child with Down syndrome.

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This entry was posted on Tuesday, September 22nd, 2009 at 1:09 pm and is filed under Down syndrome, Food Allergies, Parenting. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

11 comments so far

Sandy Costall
 1 

Ashley- I love reading your blogs and this one is very true. I remember people saying ‘I’m sorry’ to us when Matthew was born and I used to think ‘Why?’. But your blog puts a very down to earth slant on things. Thank you!!

September 22nd, 2009 at 3:01 pm
Jeannie
 2 

More tragic, not having a child at all!

September 22nd, 2009 at 4:22 pm
 3 

I sympathize with your 14 yo hair. That is way tragic. I used to cry for days over that.

It’s interesting that you get that response. When I would say I had a miscarriage, I just got blank stares. People are weird.
Tracy, txmom2many´s last blog ..Red is 13 My ComLuv Profile

September 22nd, 2009 at 5:49 pm
Cecile White
 4 

I know you say you were scared at first, but I swear I never saw you scared once. As far as I hear you took it in stride when he was born and never looked back. You are truly admirable. And truly funny too! The coolest.

September 24th, 2009 at 6:13 am
Tami
 5 

So, I don’t have a child with Down’s, but I do have an 8 year old with Autism. I’m not talking about that mild “just doesn’t know how to make friends” autism. We have the full blown real deal!

But I can say one thing that is worse than having a child with autism, is NOT having a child with autism.

I have grown in so many ways as a parent, spouse, and friend. I KNOW I wouldn’t be the same person if I didn’t have Spencer as my child. I thank God every day for sending him into my life so I could become the person I am today. He is my light, my heart and my soul. I have an older child also, and I am a better parent to him because of Spencer. We all benefit. I couldn’t live without either of my kids for what they have taught me. For those parents not blessed to have a child with special needs, they are MISSING OUT on a wonderful enriching life!!

Peace and Love!!

Tami

follow our journey at http://spencersautismjourney.blogspot.com

September 25th, 2009 at 9:20 am
 6 

Tami—Amen, sistah! This has been the most amazing adventure of my life, and I’m so grateful that God chose my little family to experience it!
Ashley

September 25th, 2009 at 9:26 am
Lisa
 7 

Ryan was sitting on my lap reading this with me and asked, “What is Downs?” I tried to explain it in 7 year old terms. He nodded sagely…then added to your list – “Oh, well, at least he isn’t going to grow a beard at like 3 or 5 years old.” Yes, well, I guess that would be bad…

September 30th, 2009 at 8:35 am
Heather
 8 

Hi Ashley, I absolutely love your outlook on life. And most of all I love the way you cherish your son as a gift, because he is. I, like you, are committed to enlighten people on the way they view down syndrome. I am sure you have read the book “gifts” and seen the movie “up syndrome”. These types of enlightened materials help to shed light and reframe the way people look at individuals with downs. What I love about people with downs is their innocence, love of life and determination to thrive. They have no barriers, no obstacles. Society has created a mindframe that suggests that people with downs are “lacking” as they label them as “disabled”. But what I love about people with downs is that even the sky is not the limit, and they live their life joyful and free.
What do I think is more tragic than downs? How about a world without individuals with downs? As the world becomes more focused on the negative, I believe we NEED the outlook of individuals with downs to balance out the true tragedies of our time. And let me tell you, finding out that your husband neglected to put gas in your car when you are already running late for work and then you are forced to stop anf fill up otherwise you will run out and then out of the blue the nozzle shoots out and spews gas everywhere soaking you from head to toe which now means that you have to drive all the way home and now will be even more late…now that’s tragic:)
Love what you are doing to change the world..keep it up :)

October 5th, 2009 at 2:54 pm
 9 

Thank you, my Aunt has Downs, and she is truly a gift and a blessing to my family! There are worse things, she could have been “normal”.
Rachel´s last blog ..Pine Cone Bird Feeder My ComLuv Profile

October 6th, 2009 at 8:06 am
Tara
 10 

I just found this (through your fb page) and I LOL when I read it! I LOVE that you used things that aren’t that bad…because it’s so true! They are worse than having a child with Ds! Thank you for the read and I may link it to my blog! (or I may just steal the idea and make up my own list:)

October 7th, 2009 at 8:26 am
Deana
 11 

Ashley, Too funny. I loved reading your blog. Thanks for posting it on the RR yahoo group site.

October 16th, 2009 at 6:32 pm

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