Posts Tagged ‘children’

“Oh, I’m so sorry….”

No, that’s not what people say to The Hubby when they find out he’s married to me. It’s the response that often follows the sentence, “My child has Down syndrome.”

I’m not here to chastise anyone. I mean, before I had my own little Flexible Flyer, I might have said that a time or two. After all, society tells us that it’s such a tragedy.

And it was, for a time, back when I lived out a lifetime of fears inside my imagination. But it quickly became apparent that I’d been sold the proverbial bill o’ goods, that the people who told me how terrible Down syndrome was had no idea what they were talking about.

I realize it’s still hard for a non-Downs parent to conceptualize. Having 3 non-Downs children myself, in addition to the velcro monkey, I feel qualified to put things in perspective for you. So here, in no particular order (why do I always feel the need to say that? As if you people would honesty expect anything resembling “order” to spring from a blog titled “Chaos Diaries.”), I give you 10 things that are more tragic than Down syndrome.

1. Having a run in your pantyhose

2. The thought that gas prices might rise above $3 again.

3. The fact that I didn’t get my Christmas tree down until after Mothers’ Day, and it’s almost time to put it up again.

4. Baking a hot, fresh loaf of bread–and then finding you’re out of butter.

5. Opening the jewel case of your favorite CD to find that last time you played it, you took whatever was in the CD player at the time out and stashed it in this case—and now you have no idea where your favorite CD is.

6. Having to vent your dryer out into the laundry room because the plumbers who ran the ductwork thought running the duct up through two stories and an attic out onto the roof would make infinitely more sense than running it 6 inches through the exterior wall, so now it’s always clogged and your dryer takes 3 hours to dry (and even then it doesn’t dry, it just slighty-less-wettens), and poses a fire hazard, so now every time you want to dry a load of clothes you have to open the window (which happens to be over the cat litter box) and prop the box fan in it to suck the hot, humid air out, because as posh as the idea of having an in-home sauna sounds, “black mold eradication” isn’t quite as sexy.

7. Peanut allergy. Especially when your 5 year old rushes into your arms crying after school, because one of her friends grabbed her hand on the way out of the classroom and of course, they ate PB&J for lunch and now she’s afraid she’s going to die any minute.

8. Traveling with 4 children.

9. Going to SuperTorture with 4 children

10. Being 14 years old and spending an hour flat-ironing your hair, only to walk outside in the humidity and have it frizz (which, according to my 14 year old, would also make it onto a list titled: “Things that are more tragic than the end of life as we know it on this planet).

I could go on forever. Seriously–you know I could. And what’s more–I bet you can come up with a few of your own. Leave me a comment, and let me know what things in YOUR life are way more tragic than the fact that you have a child with Down syndrome.

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14
Sep

Where I’m supposed to be….

   Posted by: Ashley Moreno    in Chaos, Parenting

I love being a mommy. More specifically, I love being this family’s mommy. These four children are perfect for me, and the daddy that heads us up is amazing. I thank God for them daily, and I know that I could never have done anything to deserve to be so blessed.

But every once in a while–oh, say when the 5 year old is adamant that I help her find the rubber lizard that is now lost because she left it on the entryway table and the 4 year old must have gotten to it and my bright idea of showing her the real live lizard that was hanging out (literally) on the wall in our garage is foiled by the fact that that lizard is now missing too, and the 4 year old (who’s on the naughty list for swiping the rubber lizard) is again boycotting everything on the menu except rice and I can’t sit down and feed him rice because I’m looking for the the stinkin’ lizard, and I haven’t even had a shower today and it’s almost dinner time and I’m pretty sure I didn’t get a shower yesterday either and The Hubby is out battling the evil mutant spawn-of-hell stickers with the riding lawn mower and it’s dinner time and I haven’t even thought about what to make yet and why can’t the 5 year old just play with a rubber dinosaur instead of a lizard–hypothetically speaking, of course….

Anyway, every once in a while, when I sit to take a breath and close my eyes with a cup of tea, a fleeting thought skirts my consciousness like a deer along the edge of a clearing: this isn’t where I was supposed to be.

When I was young and the first seeds that were the lack of my housekeeping skills began to sprout, my mother would stand in my doorway surveying the early manifestation of my chaos and declare: “One of these days, I’m going to sell you to the gypsies!”

I knew she wasn’t serious. Still, something about the prospect excited me. I’d seen gypsies in story books: they wore flowing skirts and scarves in brilliant colors, and the silver bells on their ankles and the golden bracelets on their wrists jangled as they danced along behind their exotic gypsy caravans. And they didn’t have to clean their rooms. Ever. I remember sneaking out of bed and pressing my ear against the curtains to listen for the tinkling of their silver bells, for the creaking of the caravan coming down my street. I didn’t have a plan of action–mine was a happy childhood, I didn’t especially want to run away and leave my family behind. But still, a gypsy’s life….

In high school, I spent a couple of summers in Europe, during which time I fell in love with the Eurail. I spray painted my name on the Berlin Wall under the intimidating eyes of an armed East German soldier, I picnicked in the Swiss Alps, and I practiced my fluent German on Germans who wanted to practice their not-so-fluent English on me. And in an act of idiotic romanticism (or romantic idiocy), I ditched the chaperone and school group and traveled–alone–across Bavaria to stay with the family of a young man I managed to get engaged to during the three days I was in West Berlin.

My name on the Berlin Wall.

My name on the Berlin Wall.

Deep within my gypsy spirit, a plan was hatching. After graduation, I’d return to Europe, Eurail pass in hand, on my own. My mother was okay with the idea–in fact, it was really her idea for me to have a “gap year,” and then return for college. But I’d already decided on a different path. Oh sure, I’d come back and go to college. Eventually. Just not right after Europe. First I’d join the Peace Corps and see the rest of the world.

But my gypsy caravan never came.

After my junior year in high school, my dad left. We floundered for a while–this wasn’t supposed to happen to families like us–both emotionally and financially. It became evident that a post-graduation plane ticket to Europe wasn’t in the budget. But it went deeper than that: the girl who spray-painted her name on the Berlin Wall and traveled cross-country by herself was afraid. The divorce had yanked loose my moorings, and things that once felt safe and sure…well, they weren’t any more. The mom who had encouraged me to spread my wings was now struggling to work full time and be a single mother to my 9 year-old sister. I couldn’t leave.

There was another consideration as well: my senior year, I met a cute latino boy with long, dark lashes who made my heart race. The girl who was going off in search of adventure wouldn’t have been available for a long-term relationship. But this girl was more than available for this boy.

And so I enrolled in The University Of Texas, a 3-hour drive away. I spent most of my first semester in tears, wrestling with the guilt of leaving my mom and my sister alone. I finished out the year, and then transferred to a local school where I could live at home and take care of them.

The rest, as they say, is history–OUR history, my family’s and mine. By the time my senior year rolled around, I had enough confidence to return to Austin and receive my BBA from the University of Texas. The Hubby and I were married that September, and have since been blessed with four amazing, beautiful children. We celebrated our 19th anniversary last week, and as we danced on the patio I realized my heart was still racing.

I took the kids to see UP this weekend. The main character is obsessed with the adventure he always wanted and never got to have. In the end, he realizes that a life lived with the people who matter to us is the greatest adventure.

Ramie found her rubber lizard. Mason ate his cheerios. I made dinner. During the meal, all four children erupted into chaos over some perceived affront that nobody will remember tomorrow, and as I intervened I managed to dip my sleeve into a hollowed out watermelon, staining my shirt pink. In that instant, the fleeting thought entered my mind that this was not where I was supposed to be…

…I was supposed to be at the PTO meeting 35 minutes ago.

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