21
Feb

Water hoses, cowgirl boots, and the “R” word….

   Posted by: Ashley Moreno   in Down syndrome, Parenting

I have no use for political correctness.

Nothing shuts down constructive dialogue faster than the fear of inadvertently saying something that will be deemed “politically incorrect” by the listener. Political correctness is the enemy of meaningful discourse.

Don’t get me wrong—I don’t condone the use of racial epithets or shock-jock language. Not because I care about some notion of political correctness, but because I’d like to think I’m a nice person who cares about the feelings of others.

Johnny Knoxville doesn’t care much for political correctness, either. I know this because he says so in the clip I’m about to share with you (don’t scroll ahead—geez, I promise I’m not going to ramble on this time. Be patient, and we’ll get there when we get there).

See, I’m not a big fan of the word “retarded.” But I realize that most people who don’t have a child with Down syndrome in their life aren’t up on the latest vernacular (which is, by the way, some combination of either of the words “cognitive” or “intellectual”, paired with either of the words “challenge” or “disability”).

If a well-meaning individual strikes up a conversation with me about the fact that their little neighbor was retarded, and she was just the sweetest thing, I’m not going to get offended. If someone asks me what the most challenging thing about raising a retarded child is, I will remain unflapped. I’ll tell you why: because we live in a country where people with Down syndrome have only recently—in the past few decades—been afforded the opportunity to live their lives outside of an institution, and in which over 90% of parents who find out pre-natally that their child will be born with Down syndrome choose to abort. The most dangerous thing we as parents can do is to discourage people from talking about Down syndrome. And the fastest way to discourage them is to make them memorize the verbage that comes to us so easily.

I had to have this conversation with Ethan when Mason was just a baby. The neighbor’s kid said to him, “Your brother’s retarded.” Being only 6 years old, E didn’t possess the verbal skills necessary to engage this child in a meaningful dialogue. What he did possess was a water hose.  But it gave me a great opportunity to engage the kid’s mother in meaningful dialogue, seeing as how when he went home soaking wet, he left out the part about why Ethan sprayed him down.

So if you want to talk to me about Down syndrome, don’t ever worry that you’re going to use the wrong words. I don’t care—it’s way more important to me that the conversation takes place.

However, I feel much differently about the use of the “R” word as a slur.  Let me elucidate….

When you say, “That’s so retarded!”  I hear, “That’s so Mason.”   Likewise, when you say “What a retard,” I hear, “What a Mason.” 

Do you get it?

See, I know that the overwhelming majority of people don’t mean to be hurtful when they use the “R” word. Well, I’m pretty sure they mean to be hurtful to whomever it is they’re talking about, but they don’t intend to slam the entire intellectually disabled community. I get that. I totally do.

But now that you know how it makes me feel for you to basically say “That’s the kind of stupid thing a person with Down syndrome would do,” now that you know that it hurts me—not offends me, but cuts me to my core—for you to equate my son’s genetic condition with stupidity, let me ask you something: do you care?

I promised you some Johnny Knoxville, and I am a woman of my word, so here it is. And by the way, anybody ever calls my son a “retard,” and for the next few days they’re going to be answering the question, “How the hell’d you get a bootprint on your forehead?”

Watch the clip HERE (as in, actually click on these words, because I am not blog-savvy enough to figure out how to actually link the clip with the little thumbnail pic down there. Nothin’ but a glorified typist, that’s what I am…).

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This entry was posted on Sunday, February 21st, 2010 at 8:08 pm and is filed under Down syndrome, Parenting. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

11 comments so far

Caitlin
 1 

Way to go, Ashley! Thank you for putting into words so eloquently what I have been trying to explain to family and friends for years. My brother in law is developmentally disabled and we have encountered the same issues. There is a difference between straightforwardness and cruelty. I wish that everyone knew that. Sometimes, I use the wrong words and I am aware of which ones should be used! Often, political correctness does get in the way of open dialogue. Thank you so much for reminding all of us of how to keep the dialogue open.

February 22nd, 2010 at 12:39 am
Tamara
 2 

I guess it depends on your definition of political correctness, but I think it means using good manners and not being offensive to groups of people. I don’t think having good manners inhibits constructive dialogue. jmo

February 22nd, 2010 at 5:48 am
 3 

Hi Tamara! Thanks for reading & commenting!
First, I agree with your emphasis on using good manners. I wish everyone used that simple standard. But I think too many people these days think that good manners means anticipating the way I want you to say something even if you have very limited or possibly no experience in this area.

I’m talking about when I hear parents of children with Down syndrome getting incensed that someone (who does not have a child with Down syndrome) didn’t use “people first” language, or said “Downs” instead of “Down syndrome.” When Mason was a baby, I found myself on the receiving end of a couple of lectures, and found it humiliating. I’m talking about this movement to focus on semantics, and the subsequent expectation that all of society had darned well keep up-to-date on the proper terminology—and if they don’t, by golly we are going to make sure they are put in their place.

I hear so many people get irate when a well-meaning stranger comes up and uses the wrong verbage—i.e., “How dare she call my son ‘a Down syndrome child’—he’s a ‘child with Down syndrome.’ ” It’s the same reason why I cannot use a term referring to people of African descent in the presence of a person of African descent (in fact, I got nervous just typing that). I’m so worried I’ll use the wrong word and get yelled at. And I know I appear pretty thick skinned, but I’m a wimp when it comes to actually being yelled at.

My point is just this: there are a whole class of terms for cognitive disability, and myriad ways to arrange our grammar and syntax (people first, big D little s, don’t you dare refer to “retarded,” even though the ARC has yet to follow their own guidelines, etc). What we (as a community overall) think we’re doing when we focus on semantics is promoting value, but I truly believe it has the exact opposite effect. People outside of our community—the very ones we need to reach and enlighten—-are getting turned off. And this is not a new phenomena: any time a group of people starts getting into the semantics game, they invite ridicule and hostility.

People avoid discomfort. Psych 101. Make them uncomfortable about saying the wrong thing and inviting scorn, and they will avoid talking about it. And we cannot afford that.

February 22nd, 2010 at 9:59 am
 4 

I just had this conversation with some friends. People get so tired of being beat up for saying the “wrong” thing that they equate “politically correct” with controlling and then over react and say all kinds of stuff they wouldn’t normally. We forget that sometimes it’s not so much politically correct as just being polite. What you are asking for is a little common courtesy, not censorship.

By the way, I prefer Bible beating breeder to crazy lady with ALL THOSE KIDS. ;)
Tracy, txmom2many´s last blog ..J1 is 12! My ComLuv Profile

February 22nd, 2010 at 10:16 am
Kathy Earhart
 5 

Ashley,
Very well said, Thank You! I couldn’t agree more with you. That word gives me chills down my spine. I do and will continue to correct people who say it in a deragatory way. I have taught my kids that we believe in God, we believe in a Holy & Perfect God, and a God that does not make ‘mistakes’. Therefore if you make fun of any of His creation, then you are saying He made a mistake. I use this all the time when they are harassing each other or say something ugly about another person. What’s crazy and cool is that they have never once made fun of a disabled person. Since they have Anna as a cousin, it is a very open topic. They are so sweet with her and are able to be up close and learn. They may stare at people they haven’t met with a disability; but I encourage them to ask questions and we talk about it. I think that’s what we need, is discussion. People don’t need to be afraid to ask, to discuss, to learn.
I think the r word started out as a legitimate word. Ie. For a child not growing physically properly… Her growth is retarded. I know, I was shocked to hear my niece referred to, by a dr, as mentally retarded. My sister, her mom, said well, that is technically correct. If you go to the definition of the word.
Lastly, on the abortion of downs children. My sister was discussing this with a neighbor, who is pro-choice. My sister, who is pro-life, was saying how she could more empathize with a teenager having an abortion, versus an established married couple, who want a baby, and abort just because of a disability. Her neighbor, told her she didn’t believe in teen abortion; but thought it was ok if your child was going to be disabled! My sister went on to explain to her how she was basically saying that it would’ve been ok to abort Anna, and that she shouldn’t have a right to life. This neighbor has an autistic son too, so it is shocking that she would hold that view. It’s sad that the world views disabilities as “problems”, “mistakes” and feels it’s ok to just kill them. A geneticist actually told my sister and her husband that Anna was “a freak of nature and should never have made it to birth”. My sister, who is waaay more vocal than me, told him that she was not a freak of nature, that she was God’s creation, that He knew her in her mother’s womb and created her in His image, just how He wanted her.
I could go on and on….. Thanks for discussing this important topic.

February 22nd, 2010 at 10:19 am
Ashley Cisneros
 6 

LOVED this post!!

February 22nd, 2010 at 1:35 pm
 7 

Hi Ashley, I’ve been on your blog before and love it!! I also have a daughter with Ds and we’re adopting 2yr. old Nadia through RR. My husband did a promo clip for church and talked about how accepting our small group was/is of Josi. In that clip, he referred to her as being retarded. I gave him a hard time about that (especially since they showed it in church!) but his explanation was that that is the “scientific” term used for having developmental delays and he wasn’t going to apologize for using it in that context. I’ve since come to understand the difference in the uses of the word and I want to thank you because I think your post sums up the way I ultimately feel about this issue. When Josi was born, we (Jim and I) promised ourselves that we would give people a LOT of grace with things said,etc. because we know it’s not easy for people to know what to say, how to say it, etc. That’s kind of been out standard for 12yrs. now. However, I will say that when a neighbor girl said that Josi was “weird”, our son, Michael (who was 4 or 5 at the time) punched her in the stomach. I was inwardly cheering him on I must admit although outwardly we handled it in a much different way. :) Ahh…memories!
Kristin Ferguson´s last blog ..While The Boys Are Away…The Girls Will Shop!!! My ComLuv Profile

February 22nd, 2010 at 6:59 pm
Jamie Rogers
 8 

Thank you! I hope you don’t mind if I “barrow” your words and make them mine. It is sometimes hard to explain why I dislike “The R Word”, so much – especially when people say, “I was talking about myself, not your son…” Your words can help other people (not in our world) understand a little bit better. Thank you! You are a wonderful writer! :)

February 23rd, 2010 at 9:16 pm
 9 

Beautifully put, Ashley. Fabulous post. I completely agree about not jumping down the throats of people who are innocently not using People First language. I’m not out to alienate well-meaning people I’m having a conversation with. It’s not worth it. It’s those who use it so carelessly as a slang term or as a slur, those that use it so generically, that I take issue with. Ah, such a fine line we all walk, but when it comes to the defense of my child, I will be certain to pick my battles well.
Rebecca´s last blog ..Buddies My ComLuv Profile

February 23rd, 2010 at 10:40 pm
Kathy Barr
 10 

I LOVE LOVE LOVE the way you explained it. It’s exactly how I feel. “retarded” when used nicely about someone with an intellectual impairment/disability is not hurtful, doesn’t boil my blood. But say that’s so PJ, or don’t be such a PJ and that’s when I blow steam. Glad I found your blog. Will keep on reading.

February 27th, 2010 at 10:56 pm
lorraine fuller
 11 

As a mother of a child with physical and learning disabilities… I am always interested in hearing the stories of others and how they have coped with raising a ‘special’ child. I recently saw a film called ‘Dakota’s Pride’ which showed the MANY wonderful blessings children with Down syndrome bring to this world. I can’t even express to you how moved I was by this film! I was amazed by all of their accomplishments… one young man with Down syndrome even graduated from college, drives his own car and is an advocate for other adults with Down syndrome! I know you get to experience these many wonders on a daily basis, but I thought I would share the following link for the video. http://www.dakotaspride.com/ I hope you can check it out!

July 20th, 2011 at 1:33 pm

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